[1] 韩露, 杨英梅, 李勇兰. 多元文化视野下的预立医疗照护计划及其价值蕴意[J]. 护理研究, 2018, 32(6): 847-849. DOI:10.3969.j.issn.1009-6493.2018.06.005. [2] VESHI D, NEITZKE G. Advance directives in some western european countries: a legal and ethical comparison between spain, france, england, and germany[J]. Eur J Health Law, 2015, 22(4): 321-345. [3] CILIBERTI R, GORINI I, GAZZANIGA V, et al. The Italian law on informed consent and advance directives: New rules of conduct for the autonomy of doctors and patients in end-of-life care[J]. J Crit Care, 2018, 48:178-182. DOI: 10.1016/j.jcrc.2018.08.039. [4] FAHNER J C, BEUNDERS A J M, VAN DER HEIDE A, et al. Interventions guiding advance care planning conversations: a systematic review[J]. J Am Med Dir Assoc, 2018,pii: S1525-8610(18)30505-X. DOI: 10.1016/j.jamda.2018.09.014. [5] EPSTEIN A S, VOLANDES A E, CHEN L Y, et al. A randomized controlled trial of a cardiopulmonary resuscitation video in advance care planning for progressive pancreas and hepatobiliary cancer patients[J]. J Palliat Med, 2013, 16(6):623-631. DOI: 10.1089/jpm.2012.0524. [6] VOGEL R I, PETZEL S V, CRAGG J, et al. Development and pilot of an advance care planning website for women with ovarian cancer: A randomized controlled trial[J]. Gynecol Oncol, 2013, 131(2):430-436. DOI: 10.1016/j.ygyno.2013.08.017. [7] 王丽英, 胡雁, 陆箴琦, 等. 肿瘤科医护人员对晚期肿瘤病人实施预立医疗照护计划态度及影响因素调查[J]. 护理研究, 2012, 26(13): 1177-1181. DOI:10.3969/j.issn.1009-6493.2012.13.010. [8] 任小静, 赵素琴. 临床医护人员对预立医疗照护计划的态度调查[J]. 系统医学, 2017, 2(20): 156-159. DOI:10.19368/j.cnki.2096-1782.2017.20.156. [9] 王丽英, 陆箴琦, 胡雁, 等. 家属对晚期肿瘤患者实施预立医疗照护计划态度的质性研究[J]. 护理学杂志, 2012, 27(17): 47-50. DOI:10.3870/hlxzz.2012.17.047. [10] RIETJENS J A C, SUDORE R L, CONNOLLY M, et al. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care[J]. Lancet Oncol, 2017, 18(9): e543-e551. DOI: 10.1016/S1470-2045(17)30582-X. [11] SUDORE R L, LUM H D, YOU J J, et al. Defining advance care planning for adults: a consensus definition from a multidisciplinary delphi panel[J]. J Pain Symptom Manage, 2017, 53(5): 821-832. DOI: 10.1016/j.jpainsymman.2016.12.331. [12] 陈柳柳, 邓仁丽, 谭景予, 等. 预立照护计划在肾脏疾病终末期患者应用中的实施综述[J]. 医学与哲学(B), 2015, 36(16): 68-71. [13] 吴梅利洋, 曾铁英. 预立医疗自主计划的意义及实施策略[J]. 护理研究, 2014(35): 4355-4357.DOI: 10.3969/j.issn.10096493.2014.035.002. [14] 孙也龙. 预先医疗指示咨询的含义、伦理价值和法律因应[J]. 南京中医药大学学报(社会科学版), 2018, 19(2): 101-105. [15] 陶鑫, 金兰. 北京市某社区人群“生前预嘱”理念认知的调查与分析[J]. 中华现代护理杂志, 2012, 18(34): 4105-4109. DOI:10.3760/cma.j.issn.1674-2907.2012.34.004. [16] YIN H. Never too late[J]. J Clin Oncol, 2018: JCO1800112. DOI: 10.1200/JCO.18.00112. [17] CIALKOWSKA-RYSZ A, DZIERZANOWSKI T. Personal fear of death affects the proper process of breaking bad news[J]. Arch Med Sci, 2013, 9(1): 127-131.DOI: 10.5114/aoms.2013.33353. [18] 睢素利. 从伦理和法律视角探讨患者自主权在预先医疗决定中的实现[J]. 中国医学伦理学, 2017, 30(10): 1213-1218. DOI:10.12026/j.issn.1001-8565.2017.10.06. [19] 赵琴琴. 关于国内重大疾病病情告知的一些思考[J]. 实用临床护理学电子杂志, 2018, 3(1): 197-198. DOI:10.3969/j.issn.2096-2479.2018.01.162. [20] 邓仁丽, 陈柳柳, 史宝欣, 等. 中国文化背景下预立医疗照护计划的研究进展[J]. 中华护理杂志, 2015, 50(9): 1117-1121. DOI:10.3761/j.issn.0254-1769.2015.09.021. [21] 祝彬. 知情同意权视角下的预先医疗指示制度[J]. 中国卫生事业管理, 2012, 29(12): 920-923. DOI:10.3969/j.issn.1004-4663.2012.12.014. [22] 选择与尊严.北京生前预嘱推广协会简介[EB/OL]. [2019-01-05].http://www.xzyzy.com/XZYZY/NewsIndex.aspx?queryStr=p0w7x08q7x15x15o3w8w1vZ8w7x08q7x15x15o3w8w1v0vZ8p4x2X12x01w1u9. [23] DIXON J, MATOSEVIC T, KNAPP M. The economic evidence for advance care planning: Systematic review of evidence[J]. Palliat Med, 2015, 29(10): 869-884. DOI: 10.1177/0269216315586659. [24] O'HANLON C E, WALLING A M, OKEKE E, et al. A framework to guide economic analysis of advance care planning[J]. J Palliat Med, 2018, 21(10): 1480-1485. DOI: 10.1089/jpm.2018.0041. [25] 李金祥, 陈慧平, 黄兰, 等. 我国姑息医学的现状与发展[J]. 实用疼痛学杂志, 2014, 10(5): 386-389.DOI: 10.3969/j.issn.1672-9633.2014.05.016. [26] 缪佳芮, 陈柳柳, 张江辉, 等. 终末期患者家属在预立医疗照护计划代理决策中的研究及评价[J]. 医学与哲学(B), 2018, 39(6): 75-78. DOI:10.12014/j.issn.1002-0772.2018.06b.21. [27] 陈柳柳. 预前照护计划在老年终末期肾脏病患者中的应用研究[D]. 湖州:湖州师范学院, 2016:49-51. [28] CHAN H Y, NG J S, CHAN K S, et al. Effects of a nurse-led post-discharge advance care planning programme for community-dwelling patients nearing the end of life and their family members: A randomised controlled trial[J]. Int J Nurs Stud, 2018, 87: 26-33. DOI: 10.1016/j.ijnurstu.2018.07.008. [29] MOGHADDAM N, COXON H, NABARRO S, et al. Unmet care needs in people living with advanced cancer: a systematic review[J]. Support Care Cancer, 2016, 24(8): 3609-3622. DOI: 10.1007/s00520-016-3221-3. [30] CUI J, SONG L J, ZHOU L J, et al. Needs of family caregivers of advanced cancer patients: a survey in Shanghai of China[J]. Eur J Cancer Care(Engl), 2014, 23(4): 562. DOI: 10.1007/s00520-016-3221-3. [31] SONENBERG A, SEPULVEDA-PACSI A L. Medicare payment: advanced care planning[J]. J Nurse Pract, 2018, 14(2): 112-116. DOI: 10.1016/j.nurpra.2018.11.023. [32] 中华人民共和国国家卫生健康委员会. 对十二届全国人大五次会议第1356号建议的答复[EB/OL].(2017-12-21)[2019-01-05].http://www.nhfpc.gov.cn/zwgk/jianyi/201712/3a814f3f0ce8469d9719f246dee29e43.shtml. [33] 侯晓婷, 陆宇晗, 杨红, 等. 终末期癌症患者优逝的研究进展[J]. 中华护理杂志, 2017, 52(9): 1134-1138.DOI: 10.3761/j.issn.0254-1769.2017.09.024. [34] 姜娜娜, 卢绪香. 呼吸衰竭病人预立医疗照护计划的调查研究[J]. 护理研究, 2018, 32(9):1427-1429.DOI: 10.12102/j.issn.1009-6493.2018.09.022. [35] 张洁, 张丹丹, 李虹, 等. 老年病房护士预立医疗照护计划的知信行现状调查[J]. 中国护理管理, 2018, 18(9): 1197-1201.DOI: 10.3969/j.issn.1672-1756.2018.09.010 [36] 韩增辉. 肝病患者及家属对“预立医疗照护计划”理念认知情况的调查与分析[D]. 长春:长春中医药大学, 2017:28-31. [37] 搜狐网界面.生前预嘱:我们可否选择“尊严死”[EB/OL].(2018-10-14)[2019-01-05].http://www.sohu.com/a/259427488_168553. [38] 360百科百度词条.死亡咖啡馆[EB/OL].(2018-08-26)[2019-01-05].https://baike.so.com/doc/7214894-7439615.html. [39] 昆明市第三人民医院.“死亡咖啡馆”助你直面死亡[EB/OL].(2018-01-05)[2019-01-05].https://mp.weixin.qq.com/s?__biz=MzAxNjQwOTk0OQ==&mid=2649770090&idx=4&sn=057d4023d1a9c6cebf3cddff751d9b53&chksm=83f1dc58b486554ea297c809f1964f692fae5158a6da70d8893802cedc1b13529f050f79d238&scene=21#wechat_redirect. [40] 王丽英. 晚期肿瘤患者预立医疗照护计划的探索性研究[D]. 上海:复旦大学, 2012:5-6. [41] 石作荣, 宋洁, 杜静. 对医护人员晚期老年痴呆患者预立医疗照护计划的态度调查[J]. 中华现代护理杂志, 2016, 22(3): 304-308.DOI: 10.3760/cma.j.issn.1674-2907.2016.03.003. [42] 吴小佳, 刘光华. 心力衰竭患者预立医疗照护计划研究进展[J]. 护理学杂志, 2017, 32(15): 17-20.DOI: 10.3870/j.issn.1001-4152.2017.15.017 [43] 洪颜. 医护人员对终末期患者施行预立医疗照护计划态度的质性研究[D]. 杭州:浙江大学, 2015:5-6. [44] SHARP T,MALYON A,BARCLAY S,等.全科医生对虚弱老年人预立临终照护计划的看法:定性研究[J]. 中国全科医学, 2018, 21(6): 632. [45] DENG R L, DUAN J Z, ZHANG J H, et al. Advance care planning for frail older people in China: A discussion paper[J]. Nurs Ethics, 2018,1: 969733018779177. DOI: 10.1177/0969733018779177. [46] 缪佳芮, 邓仁丽, 陈柳柳, 等. 预立医疗照护计划沟通要素:肿瘤科医务人员的视角[J]. 医学与哲学(B), 2018, 39(8): 81-84. |